Privacy Policy

The Neurobiobank Web site is operated by the National Institute of Mental Health (NIMH), the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and the National Institute of Neurological Disorders and Stroke (NINDS). We respect the privacy of our visitors. The following privacy policy establishes how Neurobiobank will use information gathered from your visit to our site.

If You Visit the Neurobiobank Web Site

We collect and store access information for statistical purposes. The information collected includes standard server log information, such as your computer's domain name or IP address, the date and time you access our site, the pages you viewed, the type of browser and operating system you used to access our site, and the external Web site from which you followed a link to our site, if applicable. Our Web site logs do not contain information that can be used to personally identify an individual visitor, and we make no attempt to link them with such information.


Before you can use certain features on this Web site, you must register to be an approved user. Personal information such as name, address, email and institution are collected during the registration process and are used to determine whether or not you should be approved to access advanced features such as request and submission of collection resources. Once you are approved, this information will be used to contact you in response to requests you have specifically made on this Web site. Your personal information will not be used in any other way.


Some pages on this Web site that require you to Log In, employ "cookies." A cookie is a small file that a Web site transfers to your computer's hard disk to allow the server to "remember" specific information about your session while you are connected. Requests to send cookies are not designed to collect information about you, but only about your "browser session." The cookies make it easier for you to use the dynamic features of our Web site. The cookies and the information about your session are automatically destroyed shortly after you close your browser. The information is not permanently stored on your computer. We do not collect personal information about you except as described above.

Links to Other Web Sites

Neurobiobank has links to many other Web sites, including some sites which are maintained by non-governmental organizations or private companies. Neurobiobank is not responsible for the contents of any "off-site" Web page referenced from this server. Specifically:

  • Neurobiobank cannot guarantee the privacy or security of information you provide to these other Web sites. You should review their privacy policies as well if you have concerns.
  • Reference in this Web site to any specific commercial products, process, service, manufacturer, or company does not constitute endorsement or recommendation by the US Government or Neurobiobank.

If You Send Us E-mail

By sending us an e-mail message, you may be sending personal information (e.g., your name, address, and e-mail address). We will store this information in order to respond to your request or otherwise resolve the subject matter of your e-mail. Please note, however, that e-mail messages are sent over the Internet as free text and are not secure from interception by unauthorized third parties.

If You Send Us Any Other Information

The site includes fill-in forms that may require personal information in order to receive information, software, or data. Such information will not be shared with third parties unless specified on the fill-in form or required by law. Like e-mail, form contents are sent over the Internet as free text and are not secure from interception by unauthorized third parties.

If you have questions about Neurobiobank's privacy policy, please contact us.

The NIH NeuroBioBank is a centralized repository used for the acquisition, receipt, storage and dissemination of human brains, related biospecimens, and associated clinical data. The goal of this project is to increase the availability of, and access to, high quality specimens for research in order to understand the neurological basis of disease. The legal authority to collect this information is granted under 42 U.S.C. Sections 232, 281 and 285g. The purpose of the information collection is to verify that the research scientist/institution applying to use the tissue is qualified to conduct human tissue research, maintain appropriate ethical standards and meet all legal obligations.

Those who will have access to the information you provide may include the Directors of NIH-contracted Brain and Tissue Repositories, the NIH Contracting Officer's Representative, NIMH, NINDS and NICHD research and extramural staff and contractors working on our behalf. The information you provide is voluntary. However, if you choose not to provide the requested information, you will not be able to request access to tissues held in the NIH NeuroBioBank.

Form Approved
OMB Number 0925-0723
Exp. Data 7/31/2018

Public reporting burden for this collection of information is estimated to average 15 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0723). Do not return the completed form to this address.